Egyptian AMD
It is the first association in Egypt to serve patients with muscular atrophy and to provide them with health and moral care.
Egyptian AMD
Egyptian Association of Muscular Dystrophy was founded in 2017 by Mrs. Sherifa Motawaa, CEO (LGMD patient) under the supervision & support of Dr. Rasha El Sherif (Consultant of Neuro-Muscular Disorders).
The association was established according to the Egyptian law, with the main purpose of supporting muscular dystrophy patients and their caregivers in order to guarantee & maintain a better Quality of life for MD patients.
Action plans
- Our action plan incudes but not limited to making people of Muscular Dystrophy disease an integral part of the community having their roles, rights & enjoying respect.
- In 2017 the association played a great role in submitting a new proposal for the law of disabilities to include Muscular Dystrophy patients to be discussed in the Egyptian parliament.
- Our plan will continue to ensure that Muscular Dystrophy patients are treated fairly.
Expert Egyptian AMD
Vision
Together as Muscular Dystrophy patients, we established the Egyptian Association of Muscular Dystrophy to be a reference and shelter for each & every muscular dystrophy patient striving together to reach new therapies and the care they deserve.
Mission
At EAMD we are committed to help each MD patient to maintain a better Quality of life to reach their full potential, by offering them comprehensive tailored care.
Values
- Empathy: we can feel the suffering of muscular dystrophy community in Egypt.
- Leadership: we aim to be the reference and source of awareness for patients and their caregivers.
- Empowerment: we work hard to provide every MD patient with essential tools to live a powerful life.
Goals
- Expanding the association activities by extending arms across the whole country to make it easier for the patient to reach support wherever they are.
- To provide suitable employment opportunities that is not less than the minimum wage or appointment in accordance with the educational qualifications.
- Allocation of housing units within the provinces for those with special needs and the necessary amenities.
- Building a medical building on a global level to receive and treat cases of patients with muscular atrophy and the disabled.
- Work on the issuance and amendment of legislation for patients with muscular atrophy and disabled in accordance with the current circumstances.
The complex
Members of the Assembly
