CMD
CMD (congenital muscular dystrophy) is in fact not one single condition but a number of different inherited neuromuscular conditions that are grouped under the label “congenital” because they usually show symptoms at birth or near birth. It is estimated that 1 baby in every 20,000-50,000 is born with congenital muscular dystrophy.
The different types of CMD results in overall muscle weakness with possible joint stiffness or looseness. Depending on the type, CMD may involve spinal curvature, respiratory insufficiency, intellectual disabilities, learning disabilities, eye defects or seizures, as some affect the brain.
CMD has its onset at or near birth, and progression varies with type. Many types are slowly progressive; some shorten life span, if not treated right and discovered from an early stage. Researchers have identified many of the genes that, when defective, cause various forms of CMD. These discoveries have led to greater understanding of these diseases and advances in diagnosis and treatment strategies.
OFFICE HOURS
Daily
5:00 – 12:00 pm
01123734572
Expert Egyptian AMD
Vision
Together as Muscular Dystrophy patients, we established the Egyptian Association of Muscular Dystrophy to be a reference and shelter for each & every muscular dystrophy patient striving together to reach new therapies and the care they deserve.
Mission
At EAMD we are committed to help each MD patient to maintain a better Quality of life to reach their full potential, by offering them comprehensive tailored care.
Values
- Empathy: we can feel the suffering of muscular dystrophy community in Egypt.
- Leadership: we aim to be the reference and source of awareness for patients and their caregivers.
- Empowerment: we work hard to provide every MD patient with essential tools to live a powerful life.
Goals
- Expanding the association activities by extending arms across the whole country to make it easier for the patient to reach support wherever they are.
- To provide suitable employment opportunities that is not less than the minimum wage or appointment in accordance with the educational qualifications.
- Allocation of housing units within the provinces for those with special needs and the necessary amenities.
- Building a medical building on a global level to receive and treat cases of patients with muscular atrophy and the disabled.
- Work on the issuance and amendment of legislation for patients with muscular atrophy and disabled in accordance with the current circumstances.
Other Diseases
BMD
Becker muscular dystrophy (BMD) is a condition which causes weakness in the muscles, affects mainly male children, like all muscular dystrophy diseases.
CMD
CMD (congenital muscular dystrophy) is in fact not one single condition but a number of different inherited neuromuscular conditions that are grouped under the label “congenital”
DMD
DMD Duchenne muscular dystrophy is the most common muscular dystrophy, affecting approximately 1 in every 3,500 newborn males
FSHD
FSHD Facioscapulohumeral muscular dystrophy (FSHD) is the third most common type of muscular dystrophy worldwide. The prevalence of the disease is estimated at about one in 20,000.
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