MP Mustafa El Gendy member of parliament
MP Mustafa El Gendy member of parliament
MP Mostafa El-Gendy, member of the House of Representatives, called Dr. Hala Zayed, Minister of Health, to give greater attention to patients with muscular distrophy, stressing that they suffer the most because of their government’s neglect and failure to implement their previous promises: the establishment of a center for muscular dystrophy patients on the ground of the Polio Institute. El-Gendy said in a briefing to Prime Minister Dr. Ali Abdel-Aal to the Minister of Health that the government’s promises to provide treatment have not been realized, and there is no type of medicine to treat the disease in Egypt. They are taking vitamins to build muscles only, because of the drug crisis and high prices. Warning the government that ignoring these citizens infected with the disease and who are subject to early death by the age of thirty years is just not helping them nor doing them any good.
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Expert Egyptian AMD
Vision
Together as Muscular Dystrophy patients, we established the Egyptian Association of Muscular Dystrophy to be a reference and shelter for each & every muscular dystrophy patient striving together to reach new therapies and the care they deserve.
Mission
At EAMD we are committed to help each MD patient to maintain a better Quality of life to reach their full potential, by offering them comprehensive tailored care.
Values
- Empathy: we can feel the suffering of muscular dystrophy community in Egypt.
- Leadership: we aim to be the reference and source of awareness for patients and their caregivers.
- Empowerment: we work hard to provide every MD patient with essential tools to live a powerful life.
Goals
- Expanding the association activities by extending arms across the whole country to make it easier for the patient to reach support wherever they are.
- To provide suitable employment opportunities that is not less than the minimum wage or appointment in accordance with the educational qualifications.
- Allocation of housing units within the provinces for those with special needs and the necessary amenities.
- Building a medical building on a global level to receive and treat cases of patients with muscular atrophy and the disabled.
- Work on the issuance and amendment of legislation for patients with muscular atrophy and disabled in accordance with the current circumstances.
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